Planning for Future Care: A Carepartner Perspective (2026)

In this webinar, Bill and Sajid discussed planning for future Parkinson’s care from a carepartner perspective, emphasizing that care must be highly individualized, adaptable, and responsive to changing physical, cognitive, and emotional needs. Bill explained common challenges such as mobility decline, cognitive changes, and the importance of routine, while Sajid highlighted early warning signs that additional support may be needed, including caregiver burnout. They stressed that home care was flexible, ranging from a few hours to full-time support, and could include companionship, personal care, and respite, with consistency and compassion being essential for building trust.

Bill and Sajid compared home care and residential care, noting that each had advantages depending on priorities like independence, social engagement, and budget, with no single correct choice. They encouraged early planning through open family discussions, legal preparation, and gradual introduction of care, alongside home safety adaptations and a holistic approach. Both emphasized maintaining dignity and independence by involving the person in decisions, supporting autonomy, and fostering respectful communication.

They also highlighted the importance of strong partnerships with care providers, ongoing communication, and adjusting care as needs evolved, while recognizing caregiver burnout and the need to seek help early. They concluded that proactive planning, small incremental steps, and the use of community resources and technology could support sustainable, person-centred care.

**Disclaimer: These sessions are designed to provide general education and are not intended for individual advice and/or clinical care. The information conveyed in this recording was accurate at the time of presentation.**